Oops! It appears that you have disabled your Javascript. In order for you to see this page as it is meant to appear, we ask that you please re-enable your Javascript!
  • Home
  • Blog
  • What’s EB?
  • About Hailey
  • Gallery
  • Donations
  • Home
  • Gallery
  • Hailey getting her blood draw before a hematology visit. She has horrible panic attacks before and during these visits.
  • Hailey loves art and is at Painted Earth for summer art camp.
  • Hailey dressed up as Harry Potter for Halloween. Her brother Kale hitches a ride on the back of her wheelchair.
  • Using LLLT (low level laser therapy) to heal painful new wounds.
  • 8/25/15 Hailey's left hand before surgery and her arm in a cast after. The surgery separates and straightens her fingers.
  • 8/25/15 Hailey's left hand before surgery and her arm in a cast after. The surgery separates and straightens her fingers.
  • 8/25/15 Hailey's left hand before surgery and her arm in a cast after. The surgery separates and straightens her fingers.
  • 9/02/16  Hailey had dental surgery shortly after hand surgery. This is her third serial extraction to make room for adult teeth and prevent too much crowding. Her teeth get cleaned too.
  • Hailey had dental surgery shortly after hand surgery. This is her third serial extraction to make room for adult teeth and prevent too much crowding. Her teeth get cleaned too.
  • 9/04/15  Hailey's mouth is still healing. She is back to her Orthopedist to remove the cast from her arm and place her in a brace.
  • 9/04/15  Hailey's mouth is still healing. She is back to her Orthopedist to remove the cast from her arm and place her in a brace.
  • 9/04/15  Hailey's mouth is still healing. She is back to her Orthopedist to remove the cast from her arm and place her in a brace.
  • 12/18/2015  Hailey, her mom and sister Anja are about to watch the Nutcracker ballet.
  • 7/30/16  Hailey at Painted Earth before her Make-a-Wish treehouse reveal.
  • 10/26/16  After esophagus dilation surgery Hailey is finally able to swallow again without choking. She is also getting a blood transfusion.
  • Hailey and Princess Belle
  • Hailey and Princess Belle